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Fajgenbaums is one of three subtypes of the disease. Fajgenbaum suffered three episodes of relapse and took a year off from medical school during this health crisis. He returned to school, only to suffer another relapse. After Our site this fourth relapse, he went through intense chemotherapy treatment, which put the disease in remission. He went on to complete his medical studies, graduating in 2013, and also earned his MBA in 2015. Fast forward six years from his diagnosis, and Fajgenbaum is now leading the charge to raise awareness of the disease and provide resources to others who are affected. In October, it was announced no data that he would head up the first-ever web-based registry of patient-reported data for further research on the disease. The project is called ACCELERATE, which stands for Accelerating Castleman Care with an Electronic Longitudinal registry, E-Repository, And Treatment Effectiveness research. ACCELERATE is a partnership between the Castleman Disease Collaborative Network (CDCN), the University of Pennsylvania, and the research arm of Janssen, the drug manufacturer that developed SYLVANT, the first and so far only FDA-approved treatment for multicentric Castleman disease. (Multicentric means that multiple lymph nodes and tissues are affected; another type of the disease, called unicentric, affects a single lymph node and can often be cured with surgery.) According to the University of Pennsylvania, there are approximately 6,500 to 7,700 new Castleman disease diagnoses each year in the United States. About 35 percent of patients with Fajgenbaums subtype die within five years of their initial http://richadrianfisher.pdxrwa.org/2016/09/20/helpful-considerations-for-indispensable-details-in-osce-for-medical-student diagnosis. To put that in perspective, that is about the same as the average mortality rate for all kinds of cancer.
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